Sometimes we all need a little slap of, wake the f up, reality check.
As you waste your breath complaining about life, someone out there is struggling to take their next breath.
Every breath is a gift!✨ Appreciate every breath, every morning, every hug.
Thinking of you, your wife and the strong family of support you have around you Les 🙏🏼 You are an amazing inspiration every day.
It's almost here! Next Saturday is our formal Cystic Fibrosis fundraiser and I'm so excited to get dressed up!!!
We'll be representing a date package that's up for bid at the live auction, and that means this Mama will be strutting her stuff across the stage! So aside from any high heel SNAFUs, I want to look on point.
I had so many incredible dresses to choose from, but narrowed it down to my top three choices.
Which one would you pick?
THE COUNTDOWN BEGINS! 🌷 Our Spring 2018 Line is only FIVE days away! We can't wait to show you all the styles we've been working on! FRI-YAY indeed!
For exclusive early access to shop the Spring Line, sign up for our #SDVfriends email list at the link in our bio. #SDVstyle
So the FLU was cool, ha-ha- but now I have this mystery Salivary Gland “syndrome” (I decided to give it a name) where every time I catch a virus I turn into a chipmunk. We’ve come to conclusion I can just wait it out and battle the “did you get your wisdom teeth out question?” Or I can start steroids and be psycho! About to kill two birds with one stone and take care of my lungs and face because I refuse to get more sick 😷 Side note- Day1 steroids are slowly but surely taking the chipmunk face down a couple notches lol 😝 Still low key wired and slightly hangry 🤪 #icandothis#cysticfibrosis#cfwarrior#cfcantstopme#bringitcf
So the shirts that @annmariecling and me are wearing are from the Cystic Fibrosis Fitness Institute. Taylor @cffitnessinstitute who runs it, is the first of someone I’ve heard of specializing in personal training and exercises geared towards people with Cystic Fibrosis (CF). People with CF tend to have over taxed muscles around their ribs, back and neck just from the constant coughing. Learning how to strengthen them and other areas can definitely help out. The link is in bio, if you know someone with CF or have it please check Taylor out. #cffitness#cysticfibrosis#65roses#sixtyfiveroses@cff_maryland@cf_foundation#fitcouple#cfsucks
LUNCH! ▪️Chicken with Honey, Mustard & Balsamic Sprouts
* 606 calories
* 38% fat (24.9g)
* 33% carbs (47.4g)
* 29% protein 🔹EASY • Pre heat the oven to a medium/high heat setting • Add to a roasting pan 250g of sliced sprouts (leaving any small ones whole) and a large brown onion • Add a couple of tablespoons of balsamic to a tsp of whole grain mustard and a tbsp on pure clear honey. Stir until combined and pour over the veg. Season • Sprinkle a little olive oil over the veg • Roast for 35-45 minutes • 25 minutes before they’re ready, turn the oven down to a medium heat, cover a chicken breast with a little garlic, parsley and lemon and roast • Once the sprouts have started to brown and the onion is soft, the chicken should be cooked and you can plate up • Done! ••••••••••••••••••••••••
If I’m going to eat slightly beige (and slightly green) food, it’s going to be this! It’s yummy. The sprouts are slightly sweet and the smaller ones a little crispy, the onion soft and almost caramelised. I add a little pesto to the chicken breast too once roasted but that’s just personal preference and I also usually use red onion but ran out. It’s surprisingly filling. Enjoy! 💜
It’s discharge day!!! I am going home! (Again)
Even though I’m being discharged I still have to keep a very strict treatment regimen. My doctor wants to make sure we fully clear the mucus plug. A lot, almost all, of my lung pain has stopped so that’s why she’s letting me go home. Also in my treatment regimen for home is resting, and a lot of sleep at night.
I must work very hard to keep myself from going backwards, which is why I am in the withdraw process from school. It is the best choice for my health right now.
But yay, it’s sunny out and I’m leaving! Officially my longest admission ever! It doesn’t even feel like i went home... but Hopefully this time is longer than 18 hours like last time! #cysticfibrosisawareness#cysticfibrosissucks#cysticfibrosis#strength#thestruggleisreal#ivpole#ivantibiotics#hospital#hospitallife#journeyhome#mylife
This is my ‘I have curly hair and fairy lights’ pose 🤷🏼♀️
Hope everyone has had a good Sunday! 😁
3 373 hours ago
STRESS-another thing people don’t REALLY tend to talk about too much, sometimes having CF is a good thing as it generally gives you a better outlook on life than most people are lucky enough to have, I’d rather have 40 years full of positivity and make it the best 40 years I ever could, than 100 years where I have no drive or anything that keeps me going to not be negative. However sometimes it can be SOO stressful and just makes us all fed up, this is usually by comparing to others, THEY don’t have to spend a long time doing treatments every day and THEY don’t get stomach ache is they don’t take a specific number of tablets before they eat so WHY do I?! Just wanted to say to anyone feeling like this now or recently CF is one of he things that makes you special and don’t compare yourself to others, which I know is wayyyy easier said than done, stay strong, happy and positive guys ily all your support means the world😊💗 #cysticfibrosis#cure#cf#tablets#treatments#love#life#hope x
I honestly wasn't to sure on how my run would go today due to me feeling crackling in my lungs when I breathe in. It's not a consistent crackle but just happens from time to time. It's more of an annoying feeling than anything.
Anyways, when I get those crackles I worry it's either increased mucus, or just mucus coming loose. And today I wasn't too sure what to think as it's been hard for me to get it out.
So I wanted to test my lungs out and see how I felt. I began running and my first mile was an 8 minute pace. I was feeling pretty good and from there only got faster as the miles progressed.
I began to knock mucus loose and get it out allowing me to realize that the crackling was loosened mucus. This also made me feel more at ease as I know the antibiotics I'm on are doing their job!
Yes, I'm a very anxious person when it comes to my health because I know how precious it is. I need to keep these lungs healthy in order to live a long life!
So, during my run I was overcome with joy and happiness because I was maintaining my fastest pace yet over a long distance. This pace is faster than last years when I was training for my first half marathon. No doubt about it I will smoke my last years time of 1hr42min!
It is a great feeling knowing that I am 30 years old, living with Cystic Fibrosis, and being able to run like I do! Nothing beats that feeling💪
I am feeling blessed for sure!
SUNDAZE | taking it easy with my little baby bear. this Southern California sunshine is everything we need right now. Truly healing. We have full belly’s from brunch and full hearts from friends. Enjoy your Sunday people ✌🏼 #adelinevienne#saltywarrior
6 1003 hours ago
“The attitude you bring to the day is what the day will bring to you.”
Thinking positive is one of the most important things we should do in life.
The power of positive thinking has a basis in physics. Since everything is energy and everything has a specific vibration.
It may be hard to believe, but everything on this planet and beyond is a vibration. Things appear solid to our eyes, but what we don’t see is that the whole universe is made up of vibrating particles that give the illusion of being solid.
You may argue that the vibrations of your circumstances affect your own vibration.
And that’s true but only if you allow them to.
The positive thoughts and vibration of love and happiness have far more power than the low vibrations of fear and negativity.
Therefore, happiness, balance, and mindfulness are fundamental factors that will allow us to live our lives to the fullest.
What you must know is that, if you are looking for something good or beneficial in a person or situation, you will always find it. And while you are looking, you will be a more positive and cheerful person.
Today I went swimming 🏊♀️ with my dad 🌊 I thought I was still no where near my old fitness BUT I swam my first 200m rep FASTER than I have for 2 YEARS (also beat my dad😝😂) ❗️❗️ I feel like I’m FINALLY getting somewhere and I’m very excited to hopefully keep in improving 🎉 I’m so grateful for this new treatment for my tummy - it’s made me feel like a new person 🤘🏼🏊♀️ #cysticfibrosis#swimming#tummy#sport#cfsucks#lovesport#getfit#fucf#beatingcf
La mucoviscidose, une durée de vie moyenne, un âge prédéfinie. Mais non pourquoi ? C’est terrible de dire ça et si je suis dans cette moyenne d’âge, ça veut dire que je me rapproche de la fin et qu’il me reste tant de temps à vivre .. non !! C’est ridicule de voir les choses de cette manière et de penser ça, on ne sait pas de quoi est fait demain. Seulement, j’ai trop longtemps pensé comme ça, prendre une année de plus c’était me rapprocher un peu plus de la mort mais finalement une année de plus c’est une année de gagnée pour moi et une année de perdu pour la maladie !
J’ai fais des choix qui n’étaient pas toujours les bons, mais c’est comme ça qu’on avance et qu’on progresse. Je ne pourrais pas dire à quel âge j’ai pris conscience exactement de la gravité de la situation mais ce qui est sur c’est que j’en ai pleinement conscience aujourd’hui.
J’ai un peu de mal avec cette journée, les messages d’amours (mais entre nous je préfère en avoir toute l’année ♡), les cadeaux, mais je les prends pour me donner encore plus de force et de courage. ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀
Le plus important dans tout ça c’est qu’aujourd’hui est un jour merveilleux, la concrétisation de l’amour que mes parents se portaient il y a 24 ans. ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀
Sinon, je vous dis à l’année prochaine quand je lui aurait encore mît une claque à cette muco !
“dum spiro, spero.”
while i breathe, i hope.
this old latin phrase has become iconic in the cystic fibrosis community, because while we are all struggling to breathe, we remain hopeful. for better treatments. for more tomorrows. for a cure. 💜
i’ve been using a yoga wheel to help open my airways for almost two years now, and this first slide is usually what it looks like: a rolly variation of fish pose. 🐠 when i’m sick, i can literally feel (and hear, ew) my mucus crackling free from my bronchial tubes in this posture. 😮💨 it’s not an officially recommended form of physical therapy, but if you have cf, i highly suggest you try it! you can use other props too.
tomorrow, for day four of the #yogaclubchallenge, i’ll be sharing tips for how to come into traditional supported fish pose (as shown in the second slide) in my stories. i’ll show how you can use a blanket, block, or foam roller for support too.
thank you all for your constant love and compassion. 🙏🏻 i can’t tell you how grateful i am for a community where i can openly share my experiences with chronic illness and self care without judgement. 💜💗
@yogaclubbox@nuunhydration@auroralyrayoga (rooted & rising)
viparita karani (legs up the wall)
And don’t forget... to take your ultrase... or rather, your nighttime pills :) Random fact: the enzymes (pills I take every time I eat) I grew up taking were called “Ultrase”. During college, they stopped making them, so I switched to a different brand... but to this day, I still call them Ultrase 🤷🏼♀️ #cysticfibrosis#thefreylife#doingmybest#dowhatyougottado#ichoosejoy